Why is Wilson’s Syndrome a Highly Controversial Disease?

Wilson’s Syndrome
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Thyroid patients often complain about some nonspecific symptoms which might make their diagnosis difficult. One such condition is Wilson’s syndrome which is also called “Wilson’s Temperature Syndrome.”

This syndrome was first identified by Dr. E. Denis Wilson in the 1990s. The initial symptoms of this disease include fatigue, depression, weight increase, pain, hair loss, dryness of skin, insomnia, and swelling. Patients with these symptoms don’t report any abnormality in the thyroid gland through a blood report. That’s why it is extremely difficult to diagnose Wilson’s syndrome in patients.

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Dr. Marwan Hamaty, an endocrinologist shares that most of his patients report “fatigue” as a symptom. But the problem with this symptom is that it is too general. It could be anything from sleeping disorders to psychological conditions. sometimes it’s just poor lifestyle habits that could cause fatigue which is why Wilson’s syndrome is extremely difficult to diagnose.

Sometimes there is no answer to what causes it. and that’s where the problem starts. The patient could go anywhere from specialists to Google search for finding what’s wrong with him. Dr.Hamaty calls this a real-time problem as online search could lead to anywhere. The self-diagnosis is never reliable and is often incorrect and misleading.

The online information on Wilson’s syndrome is vague and it might not be accurate. This whole condition is a set of general symptoms that are a result of overall low body temperature and sometimes the low thyroid function despite showing the normal blood test.

The accuracy of Wilson’s syndrome as a disease has mixed reviews. However, the American Thyroid Association (ATA) doesn’t accept this as a disease. That’s why many physicians also don’t consider it as a medical condition.

One major reason behind this is that there is no such medical evidence on its onset. Blood tests are a general protocol to find out the thyroid diseases but in this case, these blood tests might also be vague.

There is also doubt about the typical diagnostic tool for Wilson’s syndrome. Usually, the body temperature below 98.6 degrees is likely to experience these additional symptoms. But it is only a little different than average body temperature. And this temperature change might not be because of thyroid function always. There are many other reasons that could cause it as well.

The notes from the American Thyroid Association (ATA) say that more than 80% of the common people have these same or any one of these symptoms. It means it is not something highly specific to the patients of Wilson’s syndrome if it is a disease. Obviously not all of them would be having this disease so it means just a temperature change can not predict an actual medical condition.

In addition to this, treating a condition that might have no actual status can also invite a number of side effects in patients. The typical treatment of this syndrome, by Dr. Wilson, is to use T3, which is a hormone that typically treats hypothyroidism.

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This hormone as a part of treatment brings results like caffeine. It alerts the body and mind, elevates blood pressure, disturbs the sleep cycle, and might cause a loss of muscle too. All of these are side effects especially one this treatment is for a patient who is already suffering from a heart condition or low immunity.

Despite following the treatment, if the patient doesn’t feel any better, it can cause frustration in him. The high dose hormonal treatments could be more harmful than beneficial if there is no such thing as Wilson’s syndrome.

This is why many professionals believe that no such disease exists and it should not be regarded as a medical condition for anyone.





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