A young girl is stuck in time and acts like a 10 months old baby because of a mysterious medical condition which still remains undiagnosed. 19 years old Daisy Rainey lives in Cardiff with her mother and is dependent upon her for everything.
Surprisingly, Daisy is able to walk but all other common observations and responses of her indicate that she is still a baby. She wears pampers and her mother changes her clothes and feeds her by hand.
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Daisy has a brother Harvey who is 22 years old and is perfectly normal. The family uses a baby monitor on Daisy to make sure that she is safe as she is at high risk of epileptic seizures. In addition to that, Annie, Daisy’s mother has to wake up a couple of times in the night to watch her.
Daisy’s physical built is strong and she also possesses a high pain threshold. She is adventurous and shows no trouble while doing anything. There are so many questions on everyone’s mind who meet Daisy, mainly regarding if she has growth retardation or something. Unfortunately, there is not much that she can tell people about her because doctors are unable to identify Daisy’s condition.
Annie plans on writing a book on how to take care of people like Daisy and what should they know while interacting with such a person. She says she often hears other people’s stories about their kid’s issues and thinks that they have no idea about what its like living with a child.
Daisy’s father, Nick is a civil engineer share that would do anything to know what is wrong with his daughter. In 20 years, no doctors are able to identify what is wrong with Daisy but he is hopeful that one day, she may be diagnosed. He says that there was a probability that Daisy is suffering from Rett syndrome, but Daisy doesn’t fit into this disease’s expression.
Unlike other Retts patients who are very tender and fragile, Daisy is normal and healthy and hence doesn’t meet the criteria for this diagnosis. Annie says that she and her husband will continue to take care of Daisy no matter which disease is this. Whatever that is; they are here for her but she would like people to know the experiences of taking care of a person like Daisy so that they can learn too.
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She says when Daisy was young she thought her daughter has autism but the later years proved that it is not the case. Even if she was autistic, there are so many medical treatments to help her but the thing is that her condition is unidentifiable.
One of the doctors who have tried to treat Daisy shares that there is nothing that could help doctors to reach a conclusive end. There is no clear diagnosis of what she has and it is because there are none others with similar problems. If there are published researches or case studies that talk about similar cases, managing such a patient becomes easy. But without any research intervention, it would be impossible to find out what’s wrong with Daisy.
